Resources

April 1, 2008

Accessibility


The Center for Universal Design
North Carolina State University
(919) 515-3082
www.design.ncsu.edu/cud

National Association of Home Builders
(800) 368-5242
www.nahb.org

National Association of the Remodeling Industry
(800) 611-NARI
www.nari.org

National Center on Accessibility
(812) 856-4422
www.indiana.edu/~nca/

Trace Research & Development Center
University of Wisconsin-Madison
(608) 262-6966
www.trace.wisc.edu

U.S. Access Board
(800) 872-2253
www.access-board.gov

U.S. Department of Housing & Urban Development
(202) 708-1112
www.hud.gov

AGING


Administration on Aging
U.S. Department of Health and Human Services
(202) 619-0724
www.aoa.gov

American Association for Retired Persons (AARP)
(888) 687-2277
www.aarp.org

Eldercare Locator
(800) 677-1116
www.eldercare.gov

National Association of Area Agencies on Aging
(202) 872-0888
www.n4a.org

Medicare (Information for Beneficiaries)
www.medicare.gov

National Resource Center on Supportive Housing and Home Modification
Andrus Gerontology Center
University of Southern California
(213) 740-1364
www.homemods.org

Rehabilitation Research and Training Center on Aging with a Disability
Rancho Los Amigos National Rehabilitation Center
(562) 401-7402
www.agingwithdisability.org

Social Security Administration
www.socialsecurity.org
AICARDI SYNDROME
Aicardi Syndrome Foundation
www.aicardisyndrome.org


AIDS


AIDS Treatment Data Network
(212) 260-8868
www.atdn.org

ALS


ALS Association of America (ALSA)
(800) 782-4747
www.alsa.org
ALZHEIMER’S
Alzheimer’s Association
(800) 272-3900
www.alz.org

arthritis


National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
(877) 22-NIAMS
www.nih.gov/niams


ASSISTIVE TECHNOLOGY


ABLEDATA
(800) 227-0216
www.abledata.com

Assistive Technology Industry Association (ATIA)
(877) OUR-ATIA
www.atia.org


California State University Northridge (CSUN) Center on Disabilities
(818) 677-2684
www.csun.edu/cod/

Center for Assistive Technology
University at Buffalo
(800) 628-2281
cat.buffalo.edu

Cornucopia of Disability Information (CODI)
University at Buffalo
codi.buffalo.edu/assistiv.htm

International Seating Symposium
University of Pittsburgh
(412) 586-6921
www.iss.pitt.edu/
(Odd-numbered years)

University of British Columbia
(877) 328-7744
www.interprofessional.ubc.ca/
(Even-numbered years)

Rehabilitation Engineering & Assistive Technology Society of North America (RESNA)
(703) 524-6686
www.resna.org

University of Pittsburgh
School of Health & Rehabilitation Sciences
(412) 383-6558
www.shrs.pitt.edu/CMS/home.asp

AUTISM


Autism Society of America
(800) 3AUTISM
www.autism-society.org

Center for the Study of Autism
www.autism.org
AUTOMOBILE & Home ACCESS
Association for Driver Rehabilitation Specialists (ADED)
(800) 290-2344
www.driver-ed.org

The Center for Universal Design
(919) 515-3082
www.design.ncsu.edu/cud/

National Council on Independent Living (NCIL)
(202) 207-0334
www.ncil.org

National Mobility Equipment Dealers Association (NMEDA)
(800) 833-0427
www.nmeda.org

Specialty Equipment Market Association (SEMA) Show
(909) 396-0289
www.semashow.com

BRAIN INJURY


Brain Injury Association of America
(800) 444-6443
www.biausa.org

Brain Trauma Foundation
(212) 772-0608
www.braintrauma.org

A Celebration of Wheels
http://lenmac.tripod.com/

Rehabilitation Research and Training Center on Aging with a Disability
(562) 401-7402
www.agingwithdisability.org

cancer


American Cancer Society
(800) ACS-2345
www.cancer.org

Candlelighters Childhood Cancer Foundation
(800) 366-CCCF
www.candlelighters.org

National Cancer Institute
(800) 4-CANCER
www.cancer.gov

National Foundation for Cancer Research
(800) 321-CURE
www.nfcr.org

Pediatric Brain Tumor Foundation of the United States (PBTFUS)
(800) 253-6530
www.pbtfus.org

CAREGIVER SUPPORT


AARP Caregivers Circle
http://community.aarp.org/rp-health


AgeNet Eldercare Network
(608) 256-0488
www.caregivers.com

Empowering Caregivers
www.care-givers.com

Family Caregiver Alliance
(415) 434-3388
www.caregiver.org

National Family Caregivers Association
(800) 896-3650
www.nfcacares.org

CEREBRAL PALSY


Alternating Hemiplegia of Childhood Foundation (AHCF)
www.ahckids.org

Cerebral Palsy Information Central
http://geocities.com/aneecp/index2.html

Children’s Hemiplegia & Stroke Association
(817) 492-4325
www.chasa.org

National Institute of Neurological Disorders & Stroke
(800) 352-9424
www.ninds.nih.gov/disorders/
cerebral_palsy/cerebral_palsy.htm

United Cerebral Palsy Association
(800) 872-5827
www.ucp.org

CHARITABLE ORGANIZATIONS


National Easter Seal Society/Easter Seals
(800) 221-6827
www.easter-seals.org

International Shriners Headquarters
(800) 237-5055
http://shrinershq.org/

April of Dimes
(914) 997-4488
www.modimes.org

CHILDREN WITH DISABILITIES


Advocates Across America, Inc.
(602) 750-0004
www.axa.org

American Camp Association
(765) 342-8456
www.acacamps.org

Boundless Playgrounds
(860) 243-8315
www.boundlessplaygrounds.org

Canines for Disabled Kids
(888) KID-DOGS
www.caninesforkids.org

Children’s Disabilities Information
www.childrensdisabilities.info

Council for Exceptional Children
(888) CEC-SPED
www.ideapractices.org

Council of Parent Attorneys and Advocates
(443) 451-5270
www.copaa.net

Kid Power
www.kid-power.org

National Ataxia Foundation
(763) 553-0020
www.ataxia.org

National Dissemination Center for Children with Disabilities
(800) 695-0285
www.nichcy.org

National Organization for Rare Disorders (NORD)
(800) 999-6673
www.rarediseases.org

Pediatric Brain Tumor Foundation of the United States (PBTFUS)
(800) 253-6530
www.pbtfus.org

Special Olympics
(202) 628-3630
www.specialolympics.org

Transporting Students with Disabilities & Preschoolers
(703) 288-4088
www.eduprogroup.com

U.S. Access Board (ADA & Play Area Information)
(800) 872-2253
www.access-board.gov/play/guide/intro.htm

Winners on Wheels
(800) WOW-TALK
www.wowusa.com

The World Playground Directory
(800) 352-1137
http://world-playground.com/
accessible.htm

CYSTIC FIBROSIS


The Cystic Fibrosis Foundation
(800) 344-4823
www.cff.org
DIABETES
American Diabetes Association
(800) DIABETES
www.diabetes.org

Juvenile Diabetes Research Foundation International
(800) 533-CURE
www.jdf.org
EVENTS/SHOWS
Abilities Expo
(800) 385-3085
www.abilitiesexpo.com

International Seating Symposium
University of Pittsburgh
(412) 586-6921
www.iss.pitt.edu/
(Odd-numbered years)

University of British Columbia
(877) 328-7744
www.interprofessional.ubc.ca/


International Technology and Persons with Disabilities Conference
California State University Northridge (CSUN) Center on Disabilities
(818) 677-2578
www.csun.edu/cod/conf/index.htm

Medtrade/Nielsen Business Media
(800) 241-9034
www.medtrade.com

National Mobility Equipment Dealers Association (NMEDA)
(800) 833-0427
www.nmeda.org

National Veterans Wheelchair Games
(414) 389-4009
www.wheelchairgames.org

Rehabilitation Engineering & Assistive Technology Society of North America (RESNA)
(703) 524-6686
www.resna.org

Transporting Students with Disabilities & Preschoolers
(703) 288-4088
www.eduprogroup.com

World Congress & Exposition on Disabilities
(201) 226-1446
www.wcdexpo.com

World of Possibilities Disabilities Expo
(866) 227-4644
http://expo.caringcommunities.org
FINE ARTS
The Arts We Need, Inc. (TARN)
(800) 586-TAWN
www.theartsweneed.org

Association of Mouth and Foot Painting Artists of the World
www.amfpa.com

Coalition for Disabled Musicians, Inc.
(631) 586-0366
www.disabled-musicians.org

Dancing Wheels
(800) 901-8485
www.gggreg.com/dancingwheels.htm

Disabled Drummers Association
(305) 621-9022
www.disableddrummers.org

Handidrummed.com
www.handidrummed.com

National Arts and Disability Center
Tarjan Center for Developmental Disabilities
(310) 794-1141
http://nadc.ucla.edu

National Theatre Workshop of the Handicapped
(212) 206-7789
www.ntwh.org

The Raven Drum Foundation
(310) 774-7462
www.ravendrumfoundation.org


U.S. Handicapable Square Dance Association
www.ushandicapable.org

VSA Arts
(800) 933-8721
www.vsarts.org

 

FIBRODYSPLASIA
OSSIFICANS PROGRESSIVA
International Fibrodysplasia Ossificans Progressiva Association
(407) 365-4194
www.ifopa.orgFgile X Syndrome 

fragile x syndrome


National Fragile X Foundation
(800) 688-8765
www.fragilex.orgHEART DISEASE

heart disease


American Heart Association
(800) AHA-USA1
www.americanheart.org

HEREDITARY DISEASES


Hereditary Disease Foundation
(212) 928-2121
www.hdfoundation.org

HUNTINGTON’S DISEASE


Huntington’s Disease Society of America
(800) 345-HDSA
www.hdsa.org

MUSCULAR DYSTROPHY


Becker Muscular Dystrophy.Org
www.beckermusculardystrophy.org


Cure Duchenne Muscular Dystrophy


(949) 721-4063
www.cureduchenne.org

FacioScapuloHumeral Muscular Dystrophy Society
(781) 860-0501
www.fshsociety.org

Muscular Dystrophy Association
(800) FIGHT-MD
www.mda.org

Parent Project for Muscular Dystrophy Research
(800) 714-KIDS
www.parentprojectmd.org

MULTIPLE SCLEROSIS


International Multiple Sclerosis Support Foundation
http://msnews.org

MSLessStress.com
www.mslessstress.com

Multiple Sclerosis Association of America
(800) 532-7667
www.msaa.com

Multiple Sclerosis Foundation
888-MSFOCUS
www.msfacts.org

National Multiple Sclerosis Society
(800) FIGHT-MS
www.nationalmssociety.org

OSTEOGENESIS IMPERFECTA


Osteogenesis Imperfecta Foundation (OIF)
(800) 981-2663
www.oif.org

OSTEOPOROSIS


National Osteoporosis Foundation
(202) 223-2226
www.nof.org

PARKINSON’S DISEASE


National Parkinson Foundation, Inc.
(800) 327-4545
www.parkinson.org

Parkinson’s Disease Foundation, Inc.
(800) 457-6676
www.pdf.org

POST-POLIO


Lincolnshire Post-Polio Network
www.ott.zynet.co.uk/polio/lincolnshire

Post-Polio Health International
(314) 534-0475
www.post-polio.org

Post-Polio Syndrome Central
www.skally.net/ppsc/

PUBLICATIONS


ABILITY magazine
(949) 854-8700
www.abilitymagazine.com

Exceptional Parent magazine
(877) 372-7368
www.eparent.com

Mobility Management/MM consumer edition
(714) 532-6235
www.mobilitymgmt.com

New Mobility magazine
(215) 675-9133
www.newmobility.com


Paralinks


The Electronic Magazine for People with Spinal Cord Injury
www.paralinks.net

Paraplegic News (PN) magazine
(888) 888-2201
www.pvamagazines.com/pnnews/

Quest magazine (MDA)
(800) 344-4863
www.mdausa.org

Special Child magazine
www.specialchild.com

Sports ’n Spokes magazine
(888) 888-2201
www.pvamagazines.com/sns/

Today’s Caregiver magazine
(800) 829-2734
www.caregiver.com

National Organization for Rare Disorders (NORD)
(800) 999-6673
www.rarediseases.org

RETT SYNDROME


International Rett Syndrome Association
(800) 818-RETT
www.rettsyndrome.org

Rett Syndrome Research Foundation (RSRF)
(513) 874-3020
www.rsrf.org

SPINA BIFIDA


Spina Bifida Association of America
(800) 621-3141
www.sbaa.org


Spinal Cord Injury


Christopher & Dana Reeve Foundation
www.christopherreeve.org

Life Rolls On Foundation
(866) 939-4559
www.liferollson.org

Mike Utley Foundation
(800) 294-4683
www.mikeutley.org

National Spinal Cord Injury Association
(800) 962-9629
www.spinalcord.org

Rehabilitation Research and Training Center on Aging with a Disability
(562) 401-7402
www.agingwithdisability.org

Spinal Cord Injury Information Network
(205) 934-3283
www.spinalcord.uab.edu/

SPINAL MUSCULAR ATROPHY


Families of Spinal Muscular Atrophy
(800) 886-1762
www.fsma.org

Fight SMA/Andrew’s Buddies
(804) 515-0080
www.fightsma.org

Spinal Muscular Atrophy Foundation
(877) FUND-SMA
www.smafoundation.org
SPORTS & RECREATION
America’s Athletes with Disabilities
(301) 589-9042
www.americasathletes.org

Challenged Athletes Foundation
(858) 866-0959
www.challengedathletes.org

disAbility Information & Resources
www.makoa.org/sports.htm

Extreme Chairing
(847) 373-8695
www.extremechairing.com

International Tennis Federation
www.itftennis.com/wheelchair/

International Paralympic Committee
(49) 228-2097-200
www.paralympic.org

Beijing Paralympic Summer Games 2008
http://en.beijing2008.cn/paralympic/

Vancouver Paralympic Winter Games 2010
www.vancouver2010.com/en

National Disability Sports Alliance
(401) 792-7130
www.ndsaonline.org

National Wheelchair Basketball Association
(719) 266-4082
www.nwba.org

SitSki.com/Extreme Adaptive Sports
(908) 313-5590
www.sitski.com

Special Olympics
(202) 628-3630
www.specialolympics.org

They Will Surf Again: Life Rolls On Foundation
(866) 939-4559
www.liferollson.org

U.S. Electric Wheelchair Hockey Association PowerHockey
(763) 535-4736
www.powerhockey.com

U.S. Quad Rugby Association
(561) 964-1712
www.quadrugby.com

Wheelchair Sports U.S.A.
(732) 422-4546
www.wsusa.org


STROKE


American Heart Association
(888) 4-STROKE
www.americanheart.org

National Institute of Neurological Disorders and Stroke
(800) 352-9424
www.ninds.nih.gov

National Stroke Association
(800) STROKES
www.stroke.org

TRAVEL


Able Travel
www.able-travel.com

Access-Able Travel Source
(303) 232-2979
www.access-able.com

Centers for Disease Control (CDC) Travelers’ Health
www.cdc.gov/travel/spec_needs.htm

Global Access News Disabled Travel Network
www.globalaccessnews.com

National Highway Traffic Safety Administration (NHTSA)
(888) 327-4236
www.nhtsa.dot.gov

Specialty Equipment Market Association (SEMA)
www.enjoythedrive.com

U.S. Department of Transportation
Aviation Consumer Protection Division
(800) 778-4838
http://airconsumer.ost.dot.gov/

Wheelchair Getaways
(800) 536-5518
www.wheelchairgetaways.com

VETERANS’ SERVICES


United Spinal Association
(718) 803-3782
www.unitedspinal.org

Paralyzed Veterans of America
(800) 424-8200
www.pva.org

Women with Disabilities


Discovery Through Design
www.discoverythoughdesign.org

MobileWomen.org
www.mobilewomen.org

Women with Disabilities
U.S. Department of Heath & Human Services
Centers for Disease Control & Prevention
www.cdc.gov/ncbddd/women/default.htm

WomensHealth.gov
U.S. Department of Health &Human Services
www.4woman.gov/wwd/