Works in Progress
- By Laurie Watanabe
- Aug 01, 2021
TRAFFIC CONES: YAVUZUNLU/DEPOSITPHOTOS.COM
One of my favorite quotes is from the 2019 satire
Jojo Rabbit, starring Roman Griffin Davis as the
young title character. Toward the end of the film,
a world-weary Jojo tries to give himself a pep talk: “Jojo
Betzler. Ten-and-a-half years old. Today, just do what
Progress is often like that. It’s not an explosive
gallop. It’s more like a walk, a laborious one. Through
maple syrup, on some days. Or hardening concrete.
But slow progress is progress, and in Complex
Rehab Technology (CRT), steady and consistent
adherence to a positioning plan, for example, can work wonders one day at
a time. Check out our story on 24/7 postural management (page 16) to see
the difference that providing consistent support can make.
Don’t miss our story on custom-molded seating (page 26). I’d always
considered custom-molded seating to be a last resort for clients with the
most complex postures… but the interviewees for this story completely
changed my mind. I now know that custom seating isn’t a desperation
move; it’s an option that can open up new possibilities for progress for both
client and caregivers. I dare you to read those interviews without getting
enthusiastic about custom seating.
And sometimes in the midst of steady, determined movement forward,
you’ll get what feels like a bolt from the blue. In a single memorable week in
July, CRT notched a pair of big policy wins (see MMBeat, page 6) thanks to
the continuing work of CRT advocates.
On Sept. 21, we all get the chance to advocate for this industry and its end
users and families. Sept. 21 is the day of the NCART/NRRTS-sponsored CRT
Virtual Fly-In. For just $30 (or $15 for consumers), you can meet via video conference
with Representatives, Senators, and their staffs to directly tell them
why you believe in CRT. The impact it can have. The lives it can change. The
lives you change every day with the work that you do.
Because of the pandemic, there’s no flying to Washington, D.C., this year.
No in-person meetings on Capitol Hill. But at the same time, this virtual fly-in
— no travel required, super-low registration fee — could make it possible for
more people to participate. So… this is still progress. Visit the NCART Web site
(www.ncart.us) to register.
Occasionally, progress is measurable, dramatic, or immediate. But most of
the time, progress is a long and tedious process. We have good days, but we
have many days in which progress will simply be doing what we can.
The good news is that slow progress is progress. So keep doing the
good work you’re doing. Keep thinking creatively. Keep encouraging your
colleagues, partners, and clients. Keep advocating for inclusion and for the
basic human right to move. And keep teaching those on Capitol Hill. You are
making a difference.
This article originally appeared in the Jul/Aug 2021 issue of Mobility Management.
Laurie Watanabe is the editor of Mobility Management. She can be reached at firstname.lastname@example.org.