Consumer Resources

ACCESSIBILITY

Architecture for Humanity
www.architectureforhumanity.org

The Center for Universal Design
North Carolina State University
(919) 515-3082
www.design.ncsu.edu/cud

National Association of Home Builders
(800) 368-5242
www.nahb.org

National Center on Accessibility
(812) 856-4422
www.indiana.edu/~nca/

National Resource Center on Supportive Housing & Home Modification
(213) 740-1364
www.homemods.org

AGING

Administration on Aging
U.S. Department of Health and Human Services
(202) 619-0724
www.aoa.gov

American Association for Retired Persons (AARP)
(888) 687-2277
www.aarp.org

Eldercare Locator
(800) 677-1116
www.eldercare.gov

National Resource Center on Supportive Housing and Home Modification
Andrus Gerontology Center
University of Southern California
(213) 740-1364
www.homemods.org

Rehabilitation Research and Training Center on Aging with a Disability
Rancho Los Amigos National Rehabilitation Center
(562) 401-7402
www.agingwithdisability.org

AICARDI SYNDROME

Aicardi Syndrome Foundation
www.aicardisyndrome.org


ALS

ALS Association of America (ALSA)
(800) 782-4747
www.alsa.org

ALZHEIMER'S

Alzheimer's Association
(800) 272-3900
www.alz.org

ARTHRITIS

National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Institutes of Health
(877) 22-NIAMS
www.nih.gov/niams


AUTISM

Autism Society of America
(800) 3AUTISM
www.autism-society.org

Center for the Study of Autism
www.autism.org


BRAIN/SPINAL CORD INJURY

Brain Injury Association of America
(800) 444-6443
www.biausa.org

Brain Trauma Foundation
(212) 772-0608
www.braintrauma.org

A Celebration of Wheels
http://lenmac.tripod.com/

Life Rolls On Foundation
(866) 939-4559
www.liferollson.org

Mike Utley Foundation
(800) 294-4683
www.mikeutley.org

National Spinal Cord Injury Association
(800) 962-9629
www.spinalcord.org

The Spinal Cord Injury Zone
www.thescizone.com



CAREGIVER SUPPORT

AARP Caregivers Circle
http://community.aarp.org/rp-health

AgeNet Eldercare Network
(608) 256-0488
www.caregivers.com

Empowering Caregivers
www.care-givers.com

Family Caregiver Alliance
(415) 434-3388
www.caregiver.org


CEREBRAL PALSY

Alternating Hemiplegia of Childhood Foundation (AHCF)
www.ahckids.org

Children's Hemiplegia & Stroke Association
(817) 492-4325
www.chasa.org

National Institute of Neurological Disorders & Stroke
(800) 352-9424
www.ninds.nih.gov/disorders/cerebral_palsy/cerebral_palsy.htm

United Cerebral Palsy Association
(800) 872-5827
www.ucp.org

CHARITABLE ORGANIZATIONS

National Easter Seal Society/Easter Seals
(800) 221-6827
www.easter-seals.org

International Shriners Headquarters
(800) 237-5055
http://shrinershq.org/

March of Dimes
(914) 997-4488
www.modimes.org

CHILDREN WITH DISABILITIES

Advocates Across America, Inc.
(602) 750-0004
www.axa.org

Children's Disabilities Information
www.childrensdisabilities.info

Council for Exceptional Children
(888) CEC-SPED
www.ideapractices.org

Council of Parent Attorneys and Advocates
(443) 451-5270
www.copaa.net

National Ataxia Foundation
(763) 553-0020
www.ataxia.org

National Dissemination Center for Children with Disabilities
(800) 695-0285
www.nichcy.org

U.S. Access Board (ADA & Play Area Information)
(800) 872-2253
www.access-board.gov/play/guide/intro.htm

The World Playground Directory
(800) 352-1137
http://world-playground.com/accessible.htm


FIBRODYSPLASIA OSSIFICANS PROGRESSIVA

International Fibrodysplasia Ossificans Progressiva Association
(407) 365-4194
www.ifopa.org


HEREDITARY DISEASES

Hereditary Disease Foundation
(212) 928-2121
www.hdfoundation.org

HUNTINGTON'S DISEASE

Huntington's Disease Society of America
(800) 345-HDSA
www.hdsa.org


MUSCULAR DYSTROPHY

Becker Muscular Dystrophy.Org
www.beckermusculardystrophy.org

Cure Duchenne Muscular Dystrophy
(949) 721-4063
www.cureduchenne.org

FacioScapuloHumeral Muscular Dystrophy Society
(781) 860-0501
www.fshsociety.org

Muscular Dystrophy Association
(800) FIGHT-MD
www.mda.org


MULTIPLE SCLEROSIS

International Multiple Sclerosis Support Foundation
http://msnews.org

MSLessStress.com
www.mslessstress.com

Multiple Sclerosis Association of America
(800) 532-7667
www.msaa.com

Multiple Sclerosis Foundation
888-MSFOCUS
www.msfacts.org

National Multiple Sclerosis Society
(800) FIGHT-MS
www.nationalmssociety.org

OSTEOGENESIS IMPERFECTA

Osteogenesis Imperfecta Foundation (OIF)
(800) 981-2663
www.oif.org

OSTEOPOROSIS

National Osteoporosis Foundation
(202) 223-2226
www.nof.org


PARKINSON'S DISEASE

National Parkinson Foundation, Inc.
(800) 327-4545
www.parkinson.org

Parkinson's Disease Foundation, Inc.
(800) 457-6676
www.pdf.org

POST-POLIO

Lincolnshire Post-Polio Network
www.ott.zynet.co.uk/polio/lincolnshire

Post-Polio Health International
(314) 534-0475
www.post-polio.org

Post-Polio Syndrome Central
www.skally.net/ppsc/

RETT SYNDROME

International Rett Syndrome Association
(800) 818-RETT
www.rettsyndrome.org

Rett Syndrome Research Foundation (RSRF)
(513) 874-3020
www.rsrf.org

SPINA BIFIDA

Spina Bifida Association of America
(800) 621-3141
www.sbaa.org


SPINAL MUSCULAR ATROPHY

Families of Spinal Muscular Atrophy
(800) 886-1762
www.fsma.org

Fight SMA/Andrew's Buddies
(804) 515-0080
www.fightsma.org

Spinal Muscular Atrophy Foundation
(877) FUND-SMA
www.smafoundation.org

SPORTS & RECREATION

America's Athletes with Disabilities
(301) 589-9042
www.americasathletes.org

Challenged Athletes Foundation
(858) 866-0959
www.challengedathletes.org

disAbility Information & Resources
www.makoa.org/sports.htm

Extreme Chairing
(847) 373-8695
www.extremechairing.com

International Tennis Federation
www.itftennis.com/wheelchair/

National Disability Sports Alliance
(401) 792-7130
www.ndsaonline.org

National Wheelchair Basketball Association
(719) 266-4082
www.nwba.org

SitSki.com/Extreme Adaptive Sports
(908) 313-5590
www.sitski.com

U.S. Electric Wheelchair Hockey Association PowerHockey
(763) 535-4736
www.powerhockey.com

U.S. Quad Rugby Association
(561) 964-1712
www.quadrugby.com

Winners on Wheels
(800) WOW-TALK
www.wowusa.com

Wheelchair Sports U.S.A.
(732) 422-4546
www.wsusa.org

STROKE

National Institute of Neurological Disorders and Stroke
(800) 352-9424
www.ninds.nih.gov

National Stroke Association
(800) STROKES
www.stroke.org

TRAVEL

Able Travel
www.able-travel.com

Access-Able Travel Source
(303) 232-2979
www.access-able.com

Amtrak (train)
(800) USA-RAIL
www.amtrak.com
(Select Traveling with Disabilities and then scroll down to the Special Needs & Accessiblity section)

Carnival Cruise Lines
(800) 438-6744. Ext. 70025
www.carnival.com

Centers for Disease Control (CDC) Travelers' Health
www.cdc.gov/travel/spec_needs.htm

Global Access News Disabled Travel Network
www.globalaccessnews.com

Greyhound (bus)
(800) 752-4841
www.greyhound.com/travel_information/disabilities.shtml

National Highway Traffic Safety Administration (NHTSA)
(888) 327-4236
www.nhtsa.dot.gov

Princess (cruise line)
(800) PRINCESS
www.princess.com
(Search word: disability)

Specialty Equipment Market Association (SEMA)
www.enjoythedrive.com

U.S. Department of Transportation
Aviation Consumer Protection Division
(800) 778-4838
http://airconsumer.ost.dot.gov/

Wheelchair Getaways
(800) 536-5518
www.wheelchairgetaways.com

World Travel Guide Online, Airports
www.worldairportguide.com

VETERANS' SERVICES

United Spinal Association
(718) 803-3782
www.unitedspinal.org

Paralyzed Veterans of America
(800) 424-8200
www.pva.org

WOMEN WITH DISABILITIES

MobileWomen.org
www.mobilewomen.org




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