Trace Neuroscience, a biopharmaceutical launch based in South San Francisco, is targeting the UNC13A protein as a possible treatment path for amyotrophic lateral sclerosis (ALS) and other neurogenerative diseases. In a Nov. 12 press release, the company said UNC13A “is a genetically validated target with the potential to treat 97% of people living with ALS.”…
New Biopharmaceutical Company to Work on UNC13A Protein Cure to ALS
Briefly: CMS Adds Inclusion Body Myositis to Seating Consideration List; Nonprofit Debuts Caregiver Website
Featuring NCART, the Centers for Medicare & Medicaid Services, and I AM ALS.
CMS Adds Inclusion Body Myositis ICD-10 Code for Seating Considerations The National Coalition for Assistive & Rehab Technology (NCART) has reported that the Centers for Medicare & Medicaid Services (CMS) has added the ICD-10 code for inclusion body myositis (G72.41) to the Group 2 and Group 4 lists for consideration for a skin protection and/or…
Scott-Morgan Foundation, Lenovo Introduce AI-Powered Communication Tech for People with ALS
New system gives people with ALS greater ability to personalize their communications, today and going forward.
New technology powered by artificial intelligence (AI) could offer greater communications customizability for people with conditions such as amyotrophic lateral sclerosis (ALS). In an October press release, the Scott-Morgan Foundation and Lenovo introduced “a new technology suite combining predictive AI, hyper-realistic avatars, personalized voices, and eye-gaze tracking.” The introduction came at Lenovo Tech World 2024,…
EverythingALS Launches App for ALS Community
New version of the app will connect people with ALS while collecting data to support research.
EverythingALS, a technology- and data-focused nonprofit, has launched an app to support people living with amyotrophic lateral sclerosis (ALS), their families and caregivers, researchers, and health-care professionals. In a late August news release, Seattle-based EverythingALS said the new app, compatible with iOS and Android devices, “represents a significant upgrade from the previous version, which was…
Briefly: Workshop to Investigate GLP-1R and Nervous System Disorders; ALS Survey Investigates AI Impact on AAC
Featuring the National Academies of Sciences, Engineering, and Medicine; and Boston Children’s Hospital.
NASEM Public Workshop to Discuss Applications of GLP-1R Agonists The National Academies of Sciences, Engineering, and Medicine (NASEM) is hosting a Sept. 10 day-long workshop to discuss the impact of glucagon-like peptide-r receptor (GLP-1R) agonists on central nervous system disorders, including neurodegenerative diseases such as Parkinson’s. The workshop will bring together experts from a number…
Study: Speech Neuroprosthesis Demonstrates Quick Setup, Accuracy in ALS Patient
Brain-computer interfaces can be easier to operate than eye-gaze and other systems for people living with paralysis.
A brain-computer speech interface implanted in a patient with amyotrophic lateral sclerosis (ALS) was brought up to speed quickly and demonstrated impressive accuracy, according to a new study in the New England Journal of Medicine (NEJM). The study — “An Accurate and Rapidly Calibrating Speech Neuroprosthesis” — was published by the NEJM on Aug. 14.…
Synchron Announces Successful Brain-Computer Interface with Apple Vision Pro
An ALS patient named Mark has used his thoughts to operate the spatial computing system.
Synchron has announced that a patient using its brain-computer interface has successfully used his thoughts to control the cursor of the Apple Vision Pro, a spatial computing system. In a July 30 press release, Brooklyn-based Synchron said Mark, a 64-year-old with amyotrophic lateral sclerosis (ALS), “successfully used his direct thoughts to control the cursor on…
Study: Physically Active Men, But Not Women, at Lower ALS Risk
Other studies have shown increased ALS risk for professional athletes.
A new study from Norway found reduced amyotrophic lateral sclerosis (ALS) risk for physically active men, but not for similarly active women. The research — Physical Activity, Fitness, and Long-Term Risk of Amyotrophic Lateral Sclerosis: A Prospective Cohort Study — will be published in the July 23 issue of Neurology. The study’s abstract noted that…
The National Academies Report: Make ALS Livable in the Next Decade
Livability includes greater quality of life for people with ALS, as well as greater longevity.
A new report from the National Academies of Sciences, Engineering, and Medicine discusses how the health-care field and its professionals could most effectively support people living with amyotrophic lateral sclerosis (ALS). The consensus study report was introduced during a June 18 webinar. “At any one time, at least 30,000 people in the U.S. are living…
New ALS Guide Seeks to Boost Research Participation
Clinical professionals can use the guide to educate ALS patients about research opportunities.
A new guide from the Les Turner ALS Foundation seeks to expand the number of people with amyotrophic lateral sclerosis (ALS) who participate in clinical research, as well as the diversity of ALS clinical trial groups. In a May 16 announcement, the foundation said the step-by-step guide was created “to inform people on why clinical…